On Friday, the Teen Leadership of the Hemophilia Foundation of Southern California came to educate me on their efforts to support Dr. Ed Hernandez’s Senate Bill 586, which is currently making its way through the Legislature.
Senate Bill 586 will provide medically necessary services required by physically handicapped children whose parents are unable to pay for those services. Hemophilia is a condition that will be covered by SB 586, so the kids are meeting with local leaders generate support.
I was blown away by the poise and intelligence of these teen advocates, it brightened my day. About 1 in 5000 are affected by Hemophilia, and about 400 babies every year are born with it every year.